Hope: we're not throwing away our shot
When you live with the realities of CF you can feel helpless. You constantly worry and try to guess what impact it will have on your daughters life. You worry about how you will explain to her that she has a condition for which there is no cure. You search for ways you can help & encourage her to try to live a life unlimited. You cling onto hope and try not to think about what her future may hold. You try and live in the moment and to recognise when you are in a good space - when health is good and treatment going well. We don't want Eloise to feel like she is running out of time. We will bleed and fight for our daughter. Hope is essential to helping us to keep a positive attitude & mindset. Hope that new drugs, new research will mean we can say that CF means Cure Found. That would be enough. We put our hope into the hands of strangers - people working in research, people working for pharmaceutical companies , the CF Trust and the CF community