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Showing posts from September, 2017

Sunshine, seaside and a big bag of drugs!

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Earlier this month my husband & I, our daughter and a suitcase full of drugs and medical equipment jetted off to sunny Portugal. Our nerves were evidenced by our extensive checklists,  packing and repacking of medication, letters form the hospital and of course passports! Every parent has concerns about travelling abroad with a toddler. CF intensifies these concerns. Will her meds arrive safely? How do we make sure she is having enough salt - people with CF require additional salt in their diet as they loose lots of salt  when they sweat. Hence it's more of a worry when when the temperatures are higher! How will we fit her physio and nebuliser routine into our holiday? Will she cope with the change of  environment? Should we put the creon in the fridge? Our planning paid off and everything went really smoothly. Most importantly we all had fun and created new memories. Eloise learnt new words 'pool', 'pig' and 'Portugal' and by kissing a 19 month