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Showing posts from August, 2017

Being positive

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We never pretend to know what it's like living with CF, so do forgive me if this post it a little too optimistic. Coming to terms with a diagnosis for your two-week old child is a challenging thing and it struck me a few months ago that being positive about CF, wasn't a place we'd  permanently reside. We'd always have downs, as well as ups and it's certainly valuable to recognise when you are in a positive part of the CF orbit. B+ can be complicated With that in mind, we attended a parents' evening a couple of weeks ago organised by the splendid  CF team at Royal Manchester Children's' Hospita l.  Among the presentations, there was one from a chap who has lived with CF since the mid 1970s - about the same time I was born actually.  Among the facts of his story was that his parents were told not to expect him and his sister to make it to their late teens. More than two decades later, he's doing great and still going strong. Chatting