Two & two million

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E recently turned the big two! Along with the usual cake (a very cool Hey Duggee cake!), candles, helium balloons & laugher the background hum of cystic fibrosis was ever present.

On the day E turned two her nebulised antibiotics changed from 1 million units per viral to 2 million.  Along with the physio and other meds it was a reminder that E never gets a day off from CF.




When E was 14 months old she commenced nebulised antibiotics to fight off a pseudomona. 
This was also the day she took her first steps - in the comfort of the hospital physio room! She has been on this additional antibiotic for nearly 11 months now. She needs to have a minimum of 6 months clear of growing any pseudomonas before we can stop administering the nebuliser...

Eloise had a stupidly good second birthday! Blowing out candles is a good form of physio therapy for the lungs, right? It amazed me how much she understood it was her birthday and she loved every second of her special day. Actually, she amazes me every day. She is funny, engaging and takes everything in her stride (apart from sharing but I'm hoping that's a toddler thing?). At two years old she has become my role model. And I am very lucky because I get to see her everyday. 

Surely it's not  too much to ask, for her & others to have assess to drugs that could completely change their lives and give them more years of life? Eloise has so much more to give to this world - there's a million things she hasn't done - but just you wait.









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