Toddler V CF - reality bites!

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So, there we were, watching Man V Robot at the MOSI. Eloise & her friend Artie were engrossed, waiting to discover if a human or a robot dog was best at locating a hidden watch, when Steve got in touch to say that Eloise had to be admitted to hospital that same day.

We'd received our first IV call.

Eloise has had a runny nose and a wet cough for what feels like weeks now but the bugs in her lungs were proving resistant to antibiotics. Hence the two week admission to RMCH.




Daily we live with realities of CF but we have been fortunate to do this from the comfort of our home. Still making time for friends, fun and adventures.

Everything has been brought into sharp focus. Cannulas fitted, cannulas falling out, a 19 month old resisting sedatives, the caring & loving night time interruptions from medical staff, mid-lines, the list goes on!




However upsetting it is to see Eloise crying from pain we know it's for the best. It's another step on our journey and it may be one we have to repeat often.

We are trying to make it fun, an adventure for Eloise. We have danced to the Hokey Cokey, made cups of tea for Po & Dolly and scribbled on etcher pads.

She is currently flat out and has been for two hours, the second sedative has most definitely kicked in and she is now the proud owner of her very own mid-line.

The care we have received in the past 24 hours has been amazing. A multi disciplinary, professional approach full of knowledgeable people who care.

We having nothing but praise & gratitude for the NHS.

This is the start of our two week hospital stay but there are many others who have trodden this path before us and will continue to do so.

Everyone has their own challenges to face and this is ours. Just one thing, do you think Eloise could wear her Halloween costume in hospital...?

Comments

  1. Barb25 October 2017 at 09:03

    You and Steve are doing amazingly managing everything that CF is throwing at you. I am sure that Eloise will feel like it is an adventure and will be enjoying the attention and activities there. Enjoy your caffeine fix when your delivery arrives ;-) but i hope you guys manage to get some sleep and rest there over the next two weeks too. Big big love from us xxx

    ReplyDelete
    Replies
    1. Sadie25 October 2017 at 22:30

      Aw thanks for your comment B. We very much enjoyed our caffeine fix and it was delivered by a friendly deliver driver! I had a good nights sleep at home last night. big love xxx

      Delete

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