B positive

Forgive me, for those of you in the know the below will seam really obvious, but here  are our top tips for surviving your first hospital admission with a toddler who has CF Coffee, builders tea, mint tea - in whatever form you take it brews are an essential part of your survival kit! Take teaspoons, mugs, a dish cloth and tea towel! Whilst the staff on the ward are fabulous the brew making facilities may not be. Take a few home comforts that will make the experience it a little bit easier!  Toys, games & entertainment! I felt like a bit of a diva rocking up to A&E will all our bags & toys but boy was it worth it! To prevent cross infection you toddler will have a room of their own and will need much entertaining. Work - I enjoy my job and truth be told i have just got back into the swing of it after maternity leave. I didn't want to let people down and truly thought that I could handle a commute, work and hospital visits. In truth I was tired from...

So, there we were, watching Man V Robot at the MOSI . Eloise & her friend Artie were engrossed, waiting to discover if a human or a robot dog was best at locating a hidden watch, when Steve got in touch to say that Eloise had to be admitted to hospital that same day. We'd received our first IV call. Eloise has had a runny nose and a wet cough for what feels like weeks now but the bugs in her lungs were proving resistant to antibiotics . Hence the two week admission to RMCH. Daily we live with realities of CF but we have been fortunate to do this from the comfort of our home. Still making time for friends, fun and adventures. Everything has been brought into sharp focus. Cannulas fitted, cannulas falling out, a 19 month old resisting sedatives, the caring & loving night time interruptions from medical staff, mid-lines, the list goes on! However upsetting it is to see Eloise crying from pain we know it's for the best. It's another step on our jou...